What are Patient Organisations?

The Code of Conduct defines Patient Organisations (previously referred to as Health Consumer Organisations) as not-for-profit organisations, mainly composed of patients and/or caregivers, that represent the needs and interests of patients, their families and/or caregivers. They may range from small volunteer groups or large organisations, and generally promote views that are independent of government, the pharmaceutical industry and professional health service providers.

Medicines Australia recognises and supports positive and beneficial relationships between industry and patient organisations. Companies may enter into relationships with patient organisations with the objective of enhancing the quality use of medicines and supporting better health outcomes for the Australian community.

Through collaboration between Medicines Australia, the Consumers Health Forum of Australia and other health consumer organisations, a set of guidelines Working Together – A Guide to relationships between Health Consumer Organisations and Pharmaceutical Companies has been developed. Companies must consider these principles when entering into relationships with health consumer organisations.

Relationships between patient organisations and companies should involve the following components that are essential in any relationship:

• Respect for independence
• Achieving and maintaining public trust
• Fairness
• Openness and transparency
• Accountability

What must be reported?

Each company must provide to Medicines Australia for publication on its website, a report listing health consumer organisations to which it provides financial support and/or significant direct/indirect non-financial support. The published report must include:

1. the name of the patient organisation; and
2. a description of the nature of the support that is sufficiently complete to enable the average reader to form an understanding of the nature of the support; and
3. the monetary value of financial support and of invoiced costs. For significant non-financial support that cannot be assigned a meaningful monetary value, the published information must describe clearly the non-monetary value that the organisation receives.

Company Reports Summary